POPLPRAC 724 - Child and adolescent palliative care


This course examinations specific palliative care issues related to the care of children, adolescents, and their families covering medical, psychosocial and spiritual aspects of care.

Readings Recommended Textbooks Other readings Resources for Assignments Books Databases Websites Referencing		Course coordinator: Yvonne Bray Subject Librarian: Anne Wilson Philson Library, ext. 86126 (ph: 3737599) Please contact for assistance with library resources, databases or any problems with links to the readings. Information skills online This will give you information about the Library, how the Library can help if you live outside of Auckland, how to find the full text of articles, and strategies for researching for assignments..

Readings Copyright: Course readings may only be used for the University's educational purposes. You may print a copy for your own use, but you may not make a further copy for any other purpose. You may not copy or distribute any part of the reading to any other person. Failure to comply with these terms may expose you to legal action for copyright infringement and/or disciplinary action by the University. Accessing online readings To access online readings click on the links below each reading: Full text will link to the article Catalogue links to the record on the Library's Voyager Catalogue Recommended Textbooks Goldman, A., Hain, R., & Liben, S. (2006). Oxford textbook of palliative care for children. Oxford, England: Oxford University Press. Catalogue Note: this book is partially full text on Google Books Royal Children's Hospital. (1999). A practical guide to paediatric oncology palliative care. Brisbane, Australia: Royal Children's Hospital. Catalogue Irving, T., Thompson, A., Skylight (Organization), & Starship Children's Hospital. (2003). After your child has died: For newly bereaved parents. [Wellington, New Zealand]: Skylight. Catalogue Other readings Readings American Academy of Pediatrics, Committee on Bioethics, & Committee on Hospital Care. (2000). Palliative care for children. Pediatrics, 106(2), 351-357. Full text American Academy of Pediatrics, Committee on Bioethics. (1995). Informed consent, parental permission, and assent in pediatric practice. Pediatrics, 95(2), 314-317. Full text Arras, J., & Steinbeck, B. (1995). Moral reasoning in the medical context. In Ethical issues in modern medicine (4th ed., pp. 1-39). Mountain View, CA: Mayfield. Full text part 1, part 2 \| Catalogue Brock, D. W. (1998). Medical decisions at the end of life. In H. Kushe & P. Singer (Eds.), A companion to bioethics (pp. 231-241): Oxford, England: Blackwell. Full text \| Catalogue Dyregrov, K. (2005). Do professionals disempower bereaved people? Grief and psychosocial intervention. Bereavement Care, 24(1), 7-10. Full text Eker, L., & Tuzun, E. H. (2004). An evaluation of quality of life of mothers of children with cerebral palsy. Disability and Rehabilitation, 26(23), 1354-1359. Full text Elias-Jones, A. C., & Samanta, J. (2005). The implications of the David Glass case for future clinical practice in the UK. Archives of Disease in Childhood, 90(8), 822-825. doi:10.1136/ adc.2004.070672 Full text Hauser-Cram, P., & Hodapp, R. M. (2001). Children with disabilities: A longitudinal study of child development and parent well-being. Boston, MA.: Blackwell. Full text part 1, part 2 \| Catalogue Himelstein, B. P., Hilden, J. M., Boldt, A. M., & Weissman, D. (2004). Pediatric palliative care. New England Journal of Medicine, 350(17), 1752-1762. Full text Hynson, J. L., Gillis, J., Collins, J. J., Irving, H., & Trethewie, S. J. (2003). The dying child: How is care different? Medical Journal of Australia, 179(6 Suppl), S20-22. Full text Jones, R., Trenholme, A., Horsburgh, M., & Riding, A. (2002). The need for paediatric palliative care in New Zealand. New Zealand Medical Journal, 115(1163), U198. Retrieved from http://journal.nzma.org.nz/journal/ Full text Liben, S., & Goldman, A. (1998). Home care for children with life-threatening illness. Journal of Palliative Care, 14(3), 33-38. Full text Nadeau, J. W. (2002). Families making sense of loss. Grief matters, Autumn, 3-6. Full text Ministry of Health. (2001). The New Zealand Palliative Care Strategy. Retrieved from http://www.health.govt.nz/publication/new-zealand-palliative-care-strategy Website Parkes, C. M. (2002). Grief: lessons from the past, visions for the future. Bereavement Care, 21(2), 19-23. Full text Pinnock, R., & Crosthwaite, J. (2005). When parents refuse consent to treatment for children and young persons. Journal of Paediatrics & Child Health, 41(7), 369-373. doi:10.1111/j.1440-1754.2005.00643.x Full text Rachels, J. (1975). Active and passive euthanasia. New England Journal of Medicine, 292(2), 78-80. Full text Rushforth, H. (1999). Practitioner review: communicating with hospitalised children: Review and application of research pertaining to children's understanding of health and illness. Journal of Child Psychology & Psychiatry & Allied Disciplines, 40(5), 683-691. doi:10.1111/1469-7610.00485 Full text Rushton, C. H. (2004). Ethics and palliative care in pediatrics. American Journal of Nursing, 104(4), 54-63. Full text Schneiderman, L. J., Jecker, N. S., & Jonsen, A. R. (1995). Medical futility: Its meaning and ethical implication. In J. D. Arras & B. Steinbock (Eds.), Ethical issues in modern medicine (4th ed., pp. 281-288). Mountain View, CA: Mayfield. Full text \| Catalogue Schuurman, D. L. (2002). The club no-one wants to join: A dozen things I’ve learned from grieving children and adolescents. Grief matters, Winter, 23-25. Full text Service Improvement Network Project. (2008). Guidance for discussion about child and family wishes when life is limited. Retrieved from http://www.act.org.uk/page.asp?section=99&sectionTitle=Developing+end+of+life+plans Website : Note - on the website look to the right side and click on Child and family wishes when life is limited Skeen, J. (2004). Speaking to children about serious matters. In S. Kreitler & M. Weyl Ben Arush (Eds.), Psychosocial aspects of pediatric oncology (pp. 281-312): Chichester, England: Wiley. Full text \| Catalogue Vogel, A. M., Lennon, D., Ameratunga, S. N., & Holyoake, J. (1996). Prevalence and impact of chronic childhood conditions in Auckland, New Zealand. Journal of Paediatrics & Child Health, 32(6), 484-490. Full text Zawistowski, C. A., & Frader, J. E. (2003). Ethical problems in pediatric critical care: Consent. Critical Care Medicine, 31(5 Suppl), S407-410. Full text Resources for Assignments You may find information from the Student Learning Centre useful: writing postgraduate essays quoting and paraphrasing Databases Library Search The Catalogue finds books in the Library. Library Search Articles & More finds articles in journals. For more precise searching to find journal articles on a topic try some of the following databases. PubMed Major database for medicine. Alternatively use Medline or Scopus as these cover the same journals as PubMed AMED Alternative and Complementary Medicines Covers a selection of journals in palliative care. CINAHL Cumulative Index to Nursing and Allied Health Literature researches issues from a nursing perspective. Includes the International journal of palliative nursing. Cochrane Library Has all the Cochrane databases Embase Strong in pharmacology, psychology and psychiatry Google Scholar Has useful 'cited by' links. Google Scholar can often be a good place to start your search to find afew useful articles PsycINFO Psychological perspectives on death and dying. To see if any other databases may be of interest browse all Medical & Health Sciences databases Article not available from the University of Auckland resources or free on the net? If the journal is not held within the University of Auckland Library system request a copy of the article from another library by using the Interlibrary Loan link on the Library homepage. If you have any problems email au.interloans@auckland.ac.nz The library runs free Library Workshops on searching various databases. Check for courses, dates and times for sessions, and book online at Library Workshops Websites Ministry of Health Palliative Care CareSearch Palliative Care Knowledge Network Australian site with automatic PubMed searches by topic under the Finding Evidence link, resources and articles by topic under the Clinical Practice link, Professional groups including nurses, pastoral care workers, pharmacists, physiotherapists and a GP page with information on managing symptoms plus professional self care. NHS Evidence: Palliative care Referencing Vancouver style guide with examples APA style: Quick©ite ; APA official website; Other APA guides Referen©ite an academic referencing resource from the Student Learning Centre EndNote and Refworks - Collate your literature references and automate the referencing of your research

File updated: January 25, 2012